Epilepsy, Autism and the Joys of Puberty

Epilepsy, Autism and the Joys of Puberty

Epilepsy, Autism and the Joys of Puberty

Epilepsy is one thing they don’t talk to you about when your child is diagnosed with autism. It should be! Like, I’m totally for real. When they sit you down to tell you that your sweet child has autism, it should be another point they go over. Autism Speaks has this listed on their site. It is estimated that as many as 1/3 of individuals with autism spectrum disorder also have epilepsy.

No parent should ever have to figure this out on their own. EVER. It is the scariest thing ever to watch this happen to your child.

There’s not a darn thing you can do about it, but wait for the shaking to stop. This recently happened to my twins. Yes, you read that correct. First, it happened to Jake and scared the crap out of me and my husband. It has happened 4 more times since the first one. Thank God, he’s only had to go to the hospital the first time.

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Epilepsy, Autism and the Joys of Puberty

Then a month later, Josh had his first one. Banged his head on the wall as he went down. I swear it felt like forever before he stopped shaking when in reality it was only a minute or two. The rushing to get dressed and wait for the ambulance to get there. Scary as heck. The whole time I was talking to him as I prayed, and as my hubby kneeled beside him, whispering all was going to be ok as he talked to 911. My older daughters worried about him and his twin worried as well.

I’d rather when they diagnose a child with autism that they say, this may happen as well and to watch closely as they hit puberty. Yep both my boys are at that age. This is what the ER Dr and their regular Dr thinks might be the case. We’ll know more once they see the neurologist.  Which, don’t get me started on that. The waiting list is so long, but that’s okay as long as they figure out what is causing these and help my babies.